Comments on: Headaches http://www.myworldinshambles.com/headaches Just another WordPress weblog Sat, 19 May 2012 22:05:23 +0000 http://wordpress.org/?v=2.2.1 By: Niki http://www.myworldinshambles.com/headaches#comment-1259 Niki Sun, 11 Jan 2009 23:21:52 +0000 http://www.myworldinshambles.com/headaches#comment-1259 I know I can only understand the tip of what you're going through, and I'm sorry, really sorry that you have to suffer so. Others really don't get it. They don't know how much we cover the pain just to get through the day. Even though I have only had a few migraines, they've been crippling. Have you ever had an MRI to check for Chiari? Just curious, as your migraines sound just like mine and I suspect Chiari. It's when the brain stem slips into the spinal cord below the foramen magnum, causing all sorts of problems including blocking the flow of CSF, cerebral spinal fluid. I have all the symptoms you describe. The pain was from pressure was so bad it ruptured something behind my eye and leaked spinal fluid. By any chance, do you have loose joints? The low blood pressure is another clue. A lot of people with Chiari have Ehlers-Danlos Syndrome, a collagen disorder/ Just wondering. BTW, in most cases, having Chiari DOESN"T mean you should do anything about it. Unfortunately there are doctors (neurosurgeons) who will operate on even mild forms of Chiari, which is associated with migraines, and the cure can be worse than the disease. Still, it's worth looking up, and if you have any MRIs, get them on CD and look for it yhourself. A lot of neuirosurgeons miss it. Mine did, and he's really good. It's just that not many people know about it, but suddenly it's becoming diagnosed everywhere. I know I can only understand the tip of what you’re going through, and I’m sorry, really sorry that you have to suffer so. Others really don’t get it. They don’t know how much we cover the pain just to get through the day. Even though I have only had a few migraines, they’ve been crippling. Have you ever had an MRI to check for Chiari? Just curious, as your migraines sound just like mine and I suspect Chiari. It’s when the brain stem slips into the spinal cord below the foramen magnum, causing all sorts of problems including blocking the flow of CSF, cerebral spinal fluid. I have all the symptoms you describe. The pain was from pressure was so bad it ruptured something behind my eye and leaked spinal fluid.

By any chance, do you have loose joints? The low blood pressure is another clue. A lot of people with Chiari have Ehlers-Danlos Syndrome, a collagen disorder/ Just wondering. BTW, in most cases, having Chiari DOESN”T mean you should do anything about it. Unfortunately there are doctors (neurosurgeons) who will operate on even mild forms of Chiari, which is associated with migraines, and the cure can be worse than the disease. Still, it’s worth looking up, and if you have any MRIs, get them on CD and look for it yhourself. A lot of neuirosurgeons miss it. Mine did, and he’s really good. It’s just that not many people know about it, but suddenly it’s becoming diagnosed everywhere.

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